Frequently Asked Questions about data collection
Is my data secure?
The online system and web app have been developed by Clinvivo Ltd, a University of Warwick spin-out company specialising in data capture. The system has been extensively tested. All data are anonymised and encrypted. All data are held on a secure server with the company which has created the app.
Will my data be sold or used for commercial purposes?
The information collected will not be made available to anyone else. The National Council for Osteopathic Research (NCOR) will not sell it or use it for any commercial purposes.
Background to the development of the PROM app.
During the early months of 2014, osteopaths were asked to invite their patients to participate in either focus groups or individual interviews as we wanted to learn more about patients’ views about using Patient Reported Outcome Measures (PROMs) when they visited an osteopath for treatment. Further information about the development process can be found here.
Why are osteopaths collecting data PROM data?
The National Council for Osteopathic Research (NCOR) is developing a system to collect PROM data directly from patients. This is being achieved using either a computer (web app) or using a mobile phone (mobile app). This is a new innovation in osteopathic care and this study has received ethical review from the ethics committee at Barts and The London Queen Mary’s School of Medicine and Dentistry.
Who should I contact if I need help with the app?
If you have any difficulties completing the app, or if there is anything you would like to ask prior to completing it, please contact the project lead, Carol Fawkes. This can be done either via email (firstname.lastname@example.org) or by telephone (07494059509).